Borderline Personality Disorder Children Burdening Parents Or Parents Burdening Children

I had a telling experience while trying to get a paper published about how the parents of offspring with borderline personality disorder (BPD) give their adult children a lot of double messages (The instrument I used and the results of the study are described in a previous post). The experience indicated that the peer review process by which other practitioners review an article for scientific merit and accuracy may sometimes be more political than scientific.

At the time, I belonged to, and was the treasurer for, a research group in psychiatry in the field of personality disorders that had editorial control of a journal, the Journal of Personality Disorders (JPD).

For the purposes of gaining more financial support for their organization and its research, this group of researchers had been cultivating very close relationships with two "support groups" for the parents of people diagnosed with BPD - Treatment and Research Advances National Association for Personality Disorders (TARA), and the National Education Alliance Borderline Personality Disorder (NEA-BPD). 

As readers of this blog must know by now, my take is that the disorder is produced and maintained by certain ongoing repetitive dysfunctional interpersonal interactions with patients' families-of-origin members, particularly with primary attachment figures like parents. My paper showed that adults with the disorder reported frequent ongoing double messages from their parents and other attachment figures. The results proved to be highly, highly significant: BPD patients reported significantly more contradictory responses than did both patients with other psychiatric disorders (p=.004) and "normals" (p=.003). And this was with a small sample size that makes the results even more impressive. 

Nonetheless, the JPD turned down it down. Flat out rejected it. That the article had merit was evidenced by the fact that it was subsequently accepted for publication by a mainstream psychiatry journal, Comprehensive Psychiatry, with a broader readership. 

I cannot prove it, of course, but I suspect that the reason the paper was rejected was because the group was cultivating the relationship with the parent support groups and did not want to take any chances on alienating them.

Further evidence for my suspicion took place a short time later, when I was one of the peer reviewers for a paper for the JPD by some other authors. This paper detailed what was said when the authors interviewed the members of the parent support groups about their "burdens" in having to deal with an adult child with the disorder - as if the parents had nothing to do with the child's problems in the first place.

Research has consistently shown that a history of severe physical and/or sexual child abuse is one of the most frequently-seen risk factors for the disorder - although not all such parents of people with BPD had been physically or sexually abusive. A significant minority of them in fact exhibit a rather virulent version of highly over-involved, so called "helicopter" parenting.

Not only are these parents over-involved with their offspring, but they also feel they are burdened by them. And according to this study, by their own admission! This is the source of a borderline-ogenic double message, "I'm obsessed with you, but I feel that you are big burden." If children believe that their parents need their children to be burdensome, then that is what the children will become. Far be it for a child to deprive a parent of a cherished role.

After a while, it becomes difficult to tell who is doing what to whom to cause burdens, because the adult children and the parents feed into one another's dysfunctional behavior simultaneously. I refer to this phenomenon as dialectic causality.

My review of this other paper pointed out that the members of the support group who had been interviewed most likely fell into the over-involved rather than the abusive category of borderline-ogenic parents. After all, parents who had, for example, sexually abused their children were highly unlikely to join a parent support group (except perhaps the False Memory Syndrome Foundation, which would support them in their denial). 

Therefore, I recommended that the authors should mention that the sample they interviewed was highly likely to be a somewhat biased sample.

The paper was eventually accepted and published with almost no mention of this irony at all!

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A little bit about medication my experience with it

It Almost slipped my mind to tell you that I have tried medication to combat my panic disorder. I have tried fluxotine, citalopram and propanolol.

General information for these medications can be found here:
Citalopram
Fluoxetine
Propranolol

In my personal opinion, I didn't want to carry on with medication because;
1) I felt it did not work to help reduce my anxiety and with citalopram, actually made it worse and
2) I do not believe treating the symptoms (i.e using propanolol to reduce the heart rate increase associated with panic) and not treating the cause of the panic is an effective way of 'curing' yourself of anxiety. 
This may not be true of you and I would never advise anybody to avoid medication because it may work to reduce the unpleasant symptoms of anxiety and this may give you the confidence to 'take back' your life.
The side effects were also quite upsetting. I never had a problem sleeping with anxiety but with fluxotine especially, painfull heartburn would wake me up every night at about 3am causing me to lose sleep and make me very depressed. I lost 13lb during this time and decided that the side effects outweighed the benefits fluxotine may have given me.
I found propanolol particularly frightening for the soul basis it says on the box, not recommended for anxiety. This made me question whether my GP actually knew anything about panic disorder at all (typing angrily) When I took the tablets they did slow my heart rate but this just made me feel like I was trapped in a lifeless shell. Inside I was screaming and on the outside I couldn't even work up an increase in my heart rate. Here again, medication is just masking the symptoms. It is preposterous to think that this medication can be used on a long term basis as a treatment for panic disorder. I would rather deal with my issues than pretend they are not there with drugs. Instead of coping and existing, I would rather live.